I wish “blogs” would have been around back when my twins were riding the NICU roller coaster in 1994. It would have been nice to keep our friends and families updated of the girls’ progress, as well as give me a place to scribble out my feelings, frustrations and aggravations. In 1998, I started experimenting …
My daughter, Macy, had terrible diaper rash as a baby. It was mainly due to her “short gut syndrome” after having Necrotizing Enterocolotis (NEC). Throw in Irritable Bowel Syndrome (IBS) and Milk Soy Protein Intolerance (MSPI) and her diapers were a glutton for punishment. I used to drive 3 hours to a pharmacy that sold …
This video that Benjamin Scot made about his 1.5 lb son’s 107 day stay in the NICU brought back so many memories of my own preemie twins’ stay in the NICU (which was closer to 200 days). The video is inspiring to see baby Miles so happy and healthy in the end. Read more about …
When my twins were babies, I swear we tried every kind of baby formula made to find one compatible with their irritable little bellies since they both had Necrotizing Entero Colitis. As they grew up, we still had to monitor their food intake as Macy couldn’t have anything with milk soy protein in it, and …
My daughter was reading the Omaha World Herald to me yesterday while I was driving. The story on the front page caught her eye not only because because it was about preemie twins, but because the family included a Mallory and a Macy, the same names (although Macie is spelled different) of my twins. Victor …
