Updates from Preemie Twins

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I get repeated emails asking how my twins girls are doing now.
So, I’ve created this page to keep you all up to date, not only about them/us, but current happenings at PreemieTwins.com….

May 19, 2006
We are finally moving up with Technology!  New Updates and Such will be Posted in our Blog!!   

Our Blog 

February 17, 2006

We now have a Forum at ShoppingBookmarks.com!
We have moved our Share Your Story submissions as well as created new Topics, such as Children With Special Needs.  Please “Share Your Story” with us for Inclusion on our Site! If you have an additional topic and/or would like to help moderate the new forum, please contact me.

January 17, 2006

March of Dimes – How Can You Help? 

Donate. Participate. Volunteer. Partner. Click for More Details.

December 21, 2005
I apologize for the delays in updates. I invite you read our Christmas 2005 letter I sent out with a picture of my cute kids!

Free PREEMIE Magazine Subscription for Parents of Preemies and Professionals

November 28, 2004

FREE SEARCH Click to Receive a FREE Child Identification Kit! This kit helps you record all the information, hair samples and fingerprints necessary to find your child if he/she is ever abducted. Request one for your child, grandchild, niece, nephew, student, godchild, etc!

October 21, 2004
I have been busy making up a website detailing how to support certain charities.  I have special sections for Premature Infants and
Seriously Ill Children. I encourage you to check them out.

June 6, 2004
The girls and I attended their NICU reunion yesterday in Omaha – it was their 10th year from graduating!  Not only has the hospital changed names, but they have a whole new NICU ward.  My how technology has changed in the last 10 years!  I, alone, feel aged seeing how young the new nurses look!  We were lucky to get to visit with all of our primary nurses: Monica, Alice and Dianne. After seeing all of the attention (and prizes) that the twins got, my younger daughter, Tatym, was upset that she didn’t get to be in that hospital.  She doesn’t realize how lucky she is to not have been!

May 24, 2004
In an effort to ward off spam, we’ve eliminated all of our PreemieTwins.com email addresses.  If you desire to contact us with questions, comments and/or concerns, please use the Contact Us Form.  Thank you for understanding.

These Links have been Updated:  Read Other Stories and Submit Your Story

February 8, 2004
The twins turned ten last week!  Medical Neonatology technology on has steadily advanced over the last ten years.   My twins were lucky enough then not to be born ten years earlier, as they would have not survived. 

Cool QuoteThere are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle. Albert Einstein, born prematurely (1879-1955)

November 26, 2003
FREE Birthday e-Cards for Twins
Have a Happy and Blessed Thanksgiving from our house to yours.

October 15, 2003
Did you think I abandoned the site?  Nope, just been a little stressed. 
After 11 years of marriage and four children, my husband and I got divorced.  Things weren’t good for awhile, so the infidelity thing was my sign to get out. It has been final for a few months now.  The kids took it harder than me.  On top of that, Macy has been diagnosed with Bi-Polar and Obsessive Compulsive Disorder (OCD) and so has Taylor, my older son (something they inherited from their father).  So, this being a single mom of four has really taken a toll on me.  Macy was unexpectedly admitted to the hospital last week.  She had signs of blood poisoning, and they treated her for staph infection.  I’ll try not to be a stranger for so long again…..

February 3, 2003
I added a new picture to Our Picture Page!  I also found some much requested Preemie Patterns – Link on our
Resource Page.
Hard the believe the twins’ 9th birthday came and went so fast!  Talking with new mothers of preemies, it seems they rarely come home on monitors now-a-days!  We had them at our house for 2 1/2 years!  I think they helped with my sanity as I didn’t have to go test to make sure they were breathing as I did with my other kids (natural maternal instinct, I think ๐Ÿ™‚

January 3, 2003 Happy New Year!
Design a free webpage for your baby or twins in a matter of minutes at BabiesOnline.com!

October 8, 2002 New Recommended Resources
MSPI Guidebook/Cookbook for those with Milk Soy Protein Intolerance (Macy has this!)
NutriSystem Whether you want to lose a few pounds after pregnancy or make some extra money, this is great!

September 5, 2002 I have updated the NEC Survey with a few more questions, as new discoveries are being made.  There is litigation that babies given PDA medicine (for the holes in the heart) are more susceptible to NEC.  Also, the use of steroids given the mother before delivery is supposed to reduce the risk of NEC.  So, I incorporated these questions to compare.

I have also added a Free Stuff for Multiples page to the site!  If you know of any additional Freebies for Multiples not listed, please let me know to add them!

August 30, 2002  The girls are adjusting well to the new school.  Macy receives SPED 15% of the day, and Mallory 40%.  Some days I get discouraged because they struggle so with school, but then I am thankful that they are as “normal” and healthy as they are.

July 27, 2002 We have decided to switch our girls from parochial school to public, not only so they can receive more special ed, but so they can be in separate classrooms.  Macy tends to dominate over and talk to Mallory, so this should gain her some independence.  They will be in the second grade.

April 20, 2002 Are you an NICU nurse, neonatologist, developmental specialist, etc?  Request FREE PreemieTwins brochures for your patients.

April 1, 2002 I wrote an article about NEC featured at ThePreemiePlace.

March 22, 2002
I took Macy and Mallory to see Dr. Isburg (a neurologist) yesterday for a check up.  When I said I was concerned that we read for hours every night, and girls aren’t catching on, especially if a word is repeated right afterwards (ie the big big cat), we still have to sound it out twice.  So he asked me a bunch of questions…. Can they tell me what the story is about after they read it?  Not really; they look at the pictures and guess.  Could they tell me what the story is about if I read it to them?  Yes.  He has diagnosed them with Dyslexia.  I reacted that I guess they do tend to reverse some letters around.  He said Dyslexia is much more than that and commonly misdiagnosed.

Dyslexia is not that they are “stupid” but do not comprehend what they read.  I always wondered why Mallory can remember every word to various songs, but not remember what she read.  Or why Macy can recount an exact conversation but now know what she read either.  Dyslexia is usually hereditary, but he feels this case stems from the twins’ rough premature start.

He said to suggest to the teachers to use more visual and verbal teaching methods with the girls.  He said the hardest for them will be around third or fourth grade, and they may need to take oral tests.

The doctor suggested a prescription for Concerta, which is a stimulant drug that improves concentration and alertness.  I haven’t decided if I will try it with them or not.

Also with Mallory’s past, we have a EEG scheduled for Monday. If normal, great.  If not, he will set up another appointment with him.

March 20, 2002
New Womans-Net Forum – 25 Topics, including Preemie Parenting!

March 3, 2002
What do you think of the new site design?  Please Contact Us to let use know!

February 13, 2002
My “preemie twins” are now eight!  Yes, indeed miracle babies.  They are still developmentally delayed, and we have retained them in the first grade. Being determined to send our children to a Lutheran school, I have fought to get the public and private schools to work together for special ed for our daughters.  If you read our “story”, Macy was by far the sicker baby of the two, but Mallory seems to be the most challenged. Otherwise, besides being little for their age (they wear size 6x), they are “normal” little girls involved in ballet, tap dance, and other social activities.  Mallory is the only one to wear glasses so far and still receives Speech Therapy and Occupational Therapy.  We see the neurologist for a check up next month…
If I tend to lapse on the updates, Contact Me with a Reminder!  Thanks.