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When my twins were premature and diagnosed with all kinds of disabilities, I seeked assistance from all kinds of agencies, whether is was help with oxygen tanks or heart rate monitors. It helped to talk to other parents of preemies on where to apply for funding and/or financing for everything.
When Mallory was two and still was not walking, the pediatrician thought it was from her kyphosis (a sharp curve in her back similar to scoliosis that eventually resolved itself), but the neurologist diagnosed her with peri-ventricular leukomalicia which causes developmental delays.
Mallory eventually did learn to walk – she was just a happy-go-lucky baby that was content not walking! But had she needed to use an mobility equipment, I could have contacted the NMEDA (which stands for National Mobility Equipment Dealers Association) as they have an office in Omaha (which we frequented for doctor’s appointments).
The NMEDA does not actually sell anything, but they are a great resource to help people educate consumers on finding mobility equipment (whether it be a wheelchair automobile, handicap van or just vehicle modifications) for disabled people. NMEDA has Dealers and Quality Assurance Program (QAP) dealers, which is the only nationally recognized accreditation program for the Adaptive Mobility Equipment Industry.