Child With Fragile Health? 3 Steps To Being More Informed About Their Healthcare

Child With Fragile Health? 3 Steps To Being More Informed About Their Healthcare

If you are the parent of a child that is in a fragile medical condition, you know how important it is to understand what’s going on with his or her treatment. Any small change in the child’s health can be a source of great worry and distress. In order to do the best job you can of being the child’s advocate for medical care, you must be aware of the procedures and equipment currently being used in their treatment. Here are a 3 ways you can ensure that you stay informed of the actions that affect your child’s health in profound ways.

1—Learn All You Can About The Condition

Your child’s physician and other health professionals will provide essential information about the medical condition, but this is rarely sufficient for understanding all the ramifications of treatment protocols. Do as much reading on your own as you can, tapping into the Internet, local library and nearby college libraries to help you get a complete picture of the issues involved in treatment. If you have a broad understanding of the medical problem, you will be more likely to make informed decisions regarding treatment, therapy and other matters.

2—Understand The Healthcare Equipment And Devices Needed

Today’s healthcare often includes a range of complex equipment that is needed to sustain life or allow patients to function more easily on an everyday basis. As the parent of a medically fragile child, try to learn as much as possible about this equipment, which can mean the difference between life and death for some patients. Many of these medical devise are built and serviced by professionals with specific education and training, like a masters in electrical engineering online. It’s important you do research on your own and ask questions to ensure you are aware of how to use them and take care of yourself..

3—Meet Frequently With Healthcare Professionals

For complex medical conditions, the healthcare establishment often uses a “team approach,” that consists of physicians, medical specialists, physical therapists, respiratory therapists and psychologists to ensure that patients are receiving proper treatment and are able to deal with the stresses of having a serious medical problem. This diversification can often leave parents feeling scattered and uncertain. It’s important to meet with the healthcare team on a regular basis to define goals and understand adjustments in protocol that may be needed as treatment progresses.

Having a child with a serious medical condition can be a stressful situation that demands a great deal of your time and energy. You can ensure your child is receiving the best care possible if you educate yourself thoroughly and commit to being an active part of the child’s healthcare team. You will then be in a position to understand any changes in treatment protocols and their impact on your child’s condition.

Emma is a freelance writer based out of Boston, MA. She writes most often on health and education. When not writing, she enjoys reading and watching film noir. She suggested finding a professional lifestyle family photographer for photos you can display in your home. Say hi on Twitter @EmmaSturgis2