Updates from
Preemie Twins
I get repeated
emails asking how my twins girls are doing now.
So, I've created this page to keep you all up to date, not
only about them/us, but current happenings at PreemieTwins.com....
May 20, 2006
We are finally moving up with Technology! New Updates
and Such will be Posted in our Blog!!
February 17,
2006
We now have a Forum
at ShoppingBookmarks.com!
We have moved our Share
Your Story submissions as well as created new Topics, such
as Children
With Special Needs. Please "Share
Your Story" with us for Inclusion on our Site! If you have an additional topic
and/or would like to help moderate the new forum, please contact
me.
January 17,
2006
December 21,
2005
I apologize for the delays in updates. I invite you read our Christmas
2005 letter I sent out with a picture of my cute kids!
Free
PREEMIE Magazine Subscription for Parents of Preemies
and Professionals
November 28,
2004
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October 21,
2004
I have been busy making up a website
detailing how to support certain charities. I have
special sections for Premature
Infants and
Seriously
Ill Children. I encourage you to check them out.
June 6, 2004
The girls and I attended their NICU reunion
yesterday in Omaha - it was their 10th year from graduating!
Not only has the hospital changed names, but they have a whole
new NICU ward. My how technology has changed in the last
10 years! I, alone, feel aged seeing how young the new
nurses look! We were lucky to get to visit with all of
our primary nurses: Monica, Alice and Dianne. After seeing all
of the attention (and prizes) that the twins got, my younger
daughter, Tatym, was upset that she didn't get to be in that
hospital. She doesn't realize how lucky she is to not
have been!
May 24, 2004
In an effort to ward off spam, we've eliminated all of our
PreemieTwins.com email addresses. If you desire to
contact us with questions, comments and/or concerns, please
use the Contact Us Form. Thank
you for understanding.
These Links have
been Updated: Read
Other Stories and Submit
Your Story
February 8,
2004
The twins turned ten last week! Medical Neonatology
technology on has steadily advanced over the last ten years.
My twins were lucky enough then not to be born ten years
earlier, as they would have not survived.
Cool
Quote: There are only two ways to
live your life. One is as though nothing is a miracle. The
other is as though everything is a miracle. -
Albert Einstein, born prematurely (1879-1955)
November 26,
2003
FREE
Birthday e-Cards for Twins
Have a Happy and Blessed Thanksgiving from our house to yours.
October 15,
2003
Did you think I abandoned the site? Nope, just been
a little stressed. After
11 years of marriage and four children, my husband and I got
divorced. Things weren't good for awhile, so the
infidelity thing was my sign to get out. It has been
final for a few months now. The kids took it harder than
me. On top of that, Macy has been diagnosed with
Bi-Polar and Obsessive Compulsive Disorder (OCD) and so has
Taylor, my older son (something they inherited from their
father). So, this being a single mom of four has really
taken a toll on me. Macy was unexpectedly admitted to
the hospital last week. She had signs of blood
poisoning, and they treated her for staph infection.
I'll try not to be a stranger for so long again.....
February 3,
2003
I added a new picture to Our
Picture Page! I also found some much requested
Preemie Patterns - Link on our Resource
Page.
Hard the believe the twins' 9th birthday came and went so
fast! Talking with new mothers of preemies, it seems
they rarely come home on monitors now-a-days! We had
them at our house for 2 1/2 years! I think they helped
with my sanity as I didn't have to go test to make sure they
were breathing as I did with my other kids (natural maternal
instinct, I think :-)
January 3, 2003
Happy New Year!
Design a free webpage for your
baby or twins in a matter of minutes at BabiesOnline.com!
October
8, 2002 New Recommended Resources
MSPI
Guidebook/Cookbook for those with Milk Soy Protein
Intolerance (Macy has this!)
NutriSystem
Whether you want to lose a few pounds after pregnancy or make
some extra money, this is great!
September 5,
2002 I have updated the NEC
Survey with a few more questions, as new discoveries are
being made. There is litigation that babies given PDA
medicine (for the holes in the heart) are more susceptible to
NEC. Also, the use of steroids given the mother before
delivery is supposed to reduce the risk of NEC. So, I
incorporated these questions to compare.
I have also added
a Free Stuff for Multiples
page to the site! If you know of any additional Freebies
for Multiples not listed, please let me know to add them!
August
30, 2002 The girls are adjusting well to the new
school. Macy receives SPED 15% of the day, and Mallory
40%. Some days I get discouraged because they struggle
so with school, but then I am thankful that they are as
"normal" and healthy as they are.
July
27, 2002 We have decided to switch our girls from
parochial school to public, not only so they can receive more
special ed, but so they can be in separate classrooms.
Macy tends to dominate over and talk to Mallory, so this
should gain her some independence. They will be in the
second grade.
April 20, 2002 Are
you an NICU nurse, neonatologist, developmental specialist,
etc? Request
FREE PreemieTwins brochures for your patients.
April 1, 2002 I
wrote an article about NEC featured at ThePreemiePlace.
March 22, 2002
I took Macy and Mallory to see Dr. Isburg (a neurologist)
yesterday for a check up.
When I said I was concerned that we read for hours
every night, and girls aren’t catching on, especially if a
word is repeated right afterwards (ie the big big cat), we
still have to sound it out twice.
So he asked me a bunch of questions…. Can they tell
me what the story is about after they read it?
Not really; they look at the pictures and guess.
Could they tell me what the story is about if I read it
to them? Yes.
He has diagnosed them with Dyslexia.
I reacted that I guess they do tend to reverse some
letters around. He
said Dyslexia is much more than that and commonly
misdiagnosed.
Dyslexia is
not that they are “stupid” but do not comprehend what they
read. I always
wondered why Mallory can remember every word to various songs,
but not remember what she read.
Or why Macy can recount an exact conversation but now
know what she read either.
Dyslexia is usually hereditary, but he feels this case
stems from the twins’ rough premature start.
He said to
suggest to the teachers to use more visual and verbal teaching
methods with the girls. He
said the hardest for them will be around third or fourth
grade, and they may need to take oral tests.
The doctor
suggested a prescription for Concerta, which is a stimulant
drug that improves concentration and alertness.
I haven’t decided if I will try it with them or not.
Also
with Mallory’s past, we have a EEG scheduled for Monday. If
normal, great. If
not, he will set up another appointment with him.
March 20, 2002
New
Womans-Net Forum - 25 Topics, including Preemie Parenting!
March 3, 2002
What do you think of the new site design? Please Contact
Us to let use know!
February 13, 2002
My "preemie twins" are now eight! Yes, indeed
miracle babies. They are still developmentally delayed,
and we have retained them in the first grade. Being determined
to send our children to a Lutheran school, I have fought to
get the public and private schools to work together for
special ed for our daughters. If you read our "story",
Macy was by far the sicker baby of the two, but Mallory seems
to be the most challenged. Otherwise, besides being little for
their age (they wear size 6x), they are "normal"
little girls involved in ballet, tap dance, and other social
activities. Mallory is the only one to wear glasses so
far and still receives Speech Therapy and Occupational
Therapy. We see the neurologist for a check up next
month...
If I tend to lapse on the
updates, Contact Me with a Reminder!
Thanks.
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