Preemie Stories Archive
November 1998 - February 2002
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Cindy		04/Feb/2002:19:14:19
Hi, I have been needing to find all of you. My daughters were born November 20,00 @ 27weeks. Haleigh (like Halle Berry) was 1lbs 14oz and Jenna was 2lbs 2oz. We've been so lucky that they are both doing so well, but they sure put us through a very tough time. Our expierience was nothing like a rollercoaster ride. The girls always took turns at giving us scares and they never had a good day together until February 2001 when they were finally co-bedded. We were at Childrens Hospital in Vancouver B.C. for 4 months. My husband and I stayed in a motorhome in the parking lot of the hospital. We were lucky to be able to do that since Haleigh and Jenna were our only kids. They were ventalated for about 2 1/2 months and Jenna came home on O2. They had all the usual infections plus a viral infection that landed Haleigh in isolation for three weeks. Our worst night was watching as the doc's and nurses did C.P.R. to revive our little Jenna when her ventalator got plugged. Our babies have been...
Monica Barber		31/Jan/2002:18:11:55
My daughter was born at 27wks. She weighed 2lbs. After a bout with NEC she recovered and came home after a long 69 days. She weighed 4lbs. 5ozs. when she was released. She is now 9 years old and perfect. In 1992, they didn't give her much of a chance, but she proved them all wrong. Melissa Darlene Nicole Barber July 23 1992. Thanks for giving me somewhere to share my story.
Nicole Muoio		19/Jan/2002:20:36:28
I am a single mother of boy/girl twins that were born at 26 weeks. Nicholas was 1#14 oz. and Julianne was 1#15oz. Julianne came off the vent after 1 week, Nic after 3. Julianne was fiesty from the beginning. She was born first, and did everything first. (we all know the routine) She just grew and grew and grew..... She was discharged at 34 weeks at 4#2oz and happy and healthy. never so much as an infection. Nic gave me a few scares (being a nurse and knowing what to anticipate is hard) but in the end, he came home at 35 weeks on a small amount of O2 that he was off by 40 weeks. They are now 14 months old. The ped considers them back caught up developmentally already. They were baptized at christmas and it was a true celebration to God for the miracles I have been given. Thank you all for sharing and God bless you for strength and courage. Nicole Muoio
Kristina Keegan		02/Jan/2002:17:33:56
My son Lucas Damien was born at 28 weeks but was the size of a 24 weeker due to my placenta not functioning properly. He was born on the 3rd of May 2001 at the Royal Womens Hospital in Brisbane. He was 768gms which is a little over 1lb. Sadly he passed away on the 2nd of October in my arms he was 1 day off being 5 months old. Lucas was a little guy with a big personality and I am missing him like crazy but his lungs had deteriorated so bad that he just couldnt make it on his own. All I can say to others that are going through thisis Hang in there it will all be worth it in the long run.
India Suttles		28/Dec/2001:20:56:20
Tomorrow my boys will be 2 weeks old. They were born 15 weeks early at Children's Hospital in Buffalo. It's a trip because I thought I was doing everything right.Never would I have imagined that I would deliver my babies at 25 weeks.I thank the LORD that my boys are fighting as hard as they can right now.I feel so empty not having my babies here with me, but I trust they are getting the best care available.Your web site makes me hopeful. I never knew there were so many people in this situation.Thank you and everyone brave enough to share their story. You are definitely an inspiration to me.
Karyn Drummond	Finn and Breana's Home page.	26/Nov/2001:18:45:23
I love your site, what a wonderful job you have done and so imformative!! My b/g twins were born at 32 weeks on the 9th of Dec 2000. They are now almost a year old. (10 months corrected) This year has been full on!!! Too much to mention here but please visit their home page and read about it ALL. Even after our UNBELIEVABLE year, My husband and I think (KNOW!!) that having multiples is just THE BEST!!!!!!!! Love Karyn mum to Finn and Breana 12/9/00.
LORI ROBERTS		20/Nov/2001:17:18:24
I am the Grandmother of twins that were born 26 weeks gestation. Our twins had Twin to Twin Transfusion. One too little, one too big. God must have had a greater plan for our little Cameron. Born at 14 oz. he just wasn't strong enough to make it. He survived 15 minutes and then passed in his Daddy's arms. Jaylin, the larger twin was born at 1lb. 12 oz. I call him our miracle baby. He's fought the whole way. Like the other parents have said it's been a roller coaster. Jaylin's now a month old and almost ready to come off his ventalator and nurse on his own. God Bless to all.
Kambi Smith		19/Nov/2001:14:12:46
My husband and I have 4 1/2 month old identical twin boys who came 7 weeks early. I am a respiratory therapist and was terrified that they would have several complications but they surprised everyone. They were only in oxygen for about 12 hours after they were born, few tube feedings and some apneic episodes(which were pretty unsettling). they came home 2 weeks later. That was quite a day. They weigh 15 lbs. each now and seem to be right on schedule with everything. We are so proud and Thank God everyday for our precious angels. They are truly God's great handy work and the loves of our life! They bring a smile to our faces all the time. We can appreciate your story and all the tough times you went thru for your babies. We had a tough time also but not like that. Anyway, congratulations and thank you for your inspiring story. The girls are gorgeous!! Denny, Kam
Kambi Smith		19/Nov/2001:13:57:29
Calle Freeman		14/Nov/2001:21:29:10
I gave birth to 8wk. premature identical twin girls on Feb. 23,2001. They came into the world early because one of my twins, Daielle, had developed bi-lateral pleural effusions in utero. I was given injections of betamethasone for two days before the drs. had me come in to see if they could perform a thoracentesis(drain fluid from chest cavity) which ultimately was not completely successful. Danielle was put on a ventilator because her lungs were unable to fully expand and develop because of the fluid. She stayed on a vent. for 3wks., was in NICU for 2 months and came home on their due date. Emily was perfectly fine but had to be delivered because she was there for the ride. She was not put on a ventilator and only stayed in NICU for 1 month. This was a scary, emotional and hard to describe time for me. They are growing well and eat like two little piggies! They are needing physical therapy for a possible genetic and unrelated problem. Danielle is getting RSV injections, Emily is n
Diana Chacon		13/Nov/2001:18:12:09
I am the mother of preemie twins. They were born on July 22, 2001 and I had aboy and a girl. The girl is the big sister, both are 14 minutes apart from eachother. It was very hard having my babies so eaarly and seeing how small they were and connected to all of those machines in the NICU. Now they are both home and are doing fine but my son was send home on an apnea monitor and on oxygen. We were told to not have our babies around large crowds and they did encourage us to take our babies out every one in awahile to get them used to being exposed to the outside air. My husband is alittle more hesitant about taking the babies out. How long did you guys last before you actually took your babies out? Diana Chacon Mother Of Twins:)
Dawn -&- Matt		03/Nov/2001:14:12:48
We had boy-girl twins on July 21st of 2001. They were 6 weeks early and are now 3 months old. They weighed 4lb.6oz. and 4lb.8 oz. They had a few problems at birth but only spent 10 days in the hospital. It was really rough. We have been blessed. The twwins are growing, the little boy faster than our little girl.
Dawn-&-Matt		03/Nov/2001:14:08:07
Sandy T	Peyton -&- Paige: Our Miracles	11/Oct/2001:11:59:36
Hi, my beatiful girls were born at 28 weeks on February 25, 2000 after 8 weeks of bedrest. They each had their struggles to get well and gain weight. Paige, the littler one, had to be trasferred to another hospital because we were told she had a defect in her esophogus. She did have a tear in her esophogus, so she was fed through a tube in her belly until the esphogus could heal. Peyton had trouble with apnea, so she came home with medication. Both girls were on apnea monitors until they were 6 months old. Today, they are 19 months old and weigh over 19 pounds each. They are beautiful and busy toddlers. Paige has asthma like symptoms with a cold and they both get sick easily. Other than that, we have no problems from prematurity.
martha mendoza		06/Oct/2001:17:11:18
Gina Gracey		20/Sep/2001:18:00:52
My bestfriend had her twins yesterday morning at 29 weeks. Garrett weighs 3lbs 5 ozs and is 16 inches long and Trevor is 3lbs 6 1/2 ozs and is 17 inches long. She went to bed like any normal night and woke up an hour later and discovered that her water had broken. Her husband rushed her to the hospital and she was all ready dialted to 5cm. She gave birth 4 1/2 hours later and the babies were born naturally and were only 5 minutes apart. They were rushed to the NICU immediately and they are both doing OK. I went to see them tonight and they are so tiny. They are both on oxygen and are not yet able to eat but hopefully will be able to be fed in the next few days. The doctor says 6 week minimum stay so hopefully by Halloween the boys will join their 2 1/2 year old sister at home who is anxiously awaiting to hold them along with myself.
carrie lynn peebles		28/Aug/2001:20:41:46
hello,i have 4 month old twin boys born at 33 weeks. their names are kevin murray-&- bradin riley clark.kevin weighed 4.3 -&- braden weighed 3.13.i just think this is cool to see how other babies born early are doing!
Diane Leger		11/Aug/2001:05:51:43
Carisa		26/Jul/2001:23:26:05
Hi I have been looking at different preemie pages since my little boy Jaden was born at 33.5 weeks. I didn't know I was in labor. I noticed that I was bleeding so I called the on-call doc. He said it was up to me if I went to the hosp. I chose to go to ease my worries. When I arrived, I was dialated to a 4 and my bag of water was bulging. With the help of mag sulfate I held off for 30 hrs. I had no pain until the last 2 or 3 hrs. Easy stuff for me. Jaden was born weighing 5lbs 2oz. He was enormous compared to what we were told to expect. He had an iv and nasogastric tube. He had jaundice for a week but other than that, he did great. The doc and nurses called him miracle baby. He only stayed in the nicu for 10 days and we were able to take him home. He is now 14mos and weighs around 23lbs. He hasn't stopped eating since he figured out how. I know how lucky we are to have had such a healthy baby. I really wish the rest of you luck with your growing kids. My biggest
Carisa		26/Jul/2001:23:02:40
Hi I have been looking at different preemie pages since my little boy Jaden was born at 33.5 weeks. I didn't know I was in labor. I noticed that I was bleeding so I called the on-call doc. He said it was up to me if I went to the hosp. I chose to go to ease my worries. When I arrived, I was dialated to a 4 and my bag of water was bulging. With the help of mag sulfate I held off for 30 hrs. I had no pain until the last 2 or 3 hrs. Easy stuff for me. Jaden was born weighing 5lbs 2oz. He was enormous compared to what we were told to expect. He had an iv and nasogastric tube. He had jaundice for a week but other than that, he did great. The doc and nurses called him miracle baby. He only stayed in the nicu for 10 days and we were able to take him home. He is now 14mos and weighs around 23lbs. He hasn't stopped eating since he figured out how. I know how lucky we are to have had such a healthy baby. I really wish the rest of you luck with your growing kids. My biggest
Tena Britts		21/Jun/2001:12:40:43
My preemie twins Cody and Kate Lynn are four weeks and one day old today. They are truly a gift from God. Kate Lynn is doing wonderful. She is already on rm air w/1/2ltr flow. Her Oxygen levels have really been her only setback. She has reached three pounds as has her brother. She's on her way to getting home. Cody is a fighter. He has yet another type of sepsis but it has been caught early and he's being treated. His biggest fight is against a GRIII bleed. This is a wait and learn condition for me. (And it worries and scares me) I am so looking forward to getting them home. Time. This takes time. And support, which I have none. So, please mail me!
anthea martens		02/Jun/2001:15:49:25
this is a very good sight!me and my husband frank have bean looking for other parents with priemee qintuplets.from the five of them i have had two boys and three girls.i also have a set of twins kendra and ginger. the qintuplets are brennan,derek,kayla,caitlynne and hannah.
Collette Petty		02/Mar/2001:13:12:48
kelley and shawn gos		01/Dec/2000:23:24:47
WE HAD A BABY BOY NAMED SHAWN JR WHO WAS BORN AT 32 WEEKS AT MASS GENERAL HOSPITAL IN BOSTON MASS. ON MAY 12, 2000 HE WEIGHED 3 PDS.9 OZ.AND WAS 14 3/4 INCHES.I WAS BROUGHT IN TO HAVE A EMERGENCY C-SECTION BECAUSE MY PLACENTA MOVED A AWAY FROM THE WALL AND WAS CAUSING BLOOD CLOTS THAT WERE BIGGER THEN MY SON.HE WAS BORN BLUE AND LIMP AND WAS BROUGHT TO THE NICU DEPARTMENT WERE HE SPENT 1 MONTH 1 WEEK HE WAS ON A RESPIRATOR FOR 4 DAYS AND HE 2 HAD BRADY AND APENEA EPSIODES HE WAS TO COME HOME 4 TIMES BUT DID NOT DO SO DUE TO THESE EPSIODES.FINALLY THEY DECIDED TO PUT HIM ON CAFFEINE CITRATE WHICH WAS GIVING ONCE A DAY TO MAKE SURE HE DID NOT HAVE ANY MORE EPSIODES HE WASTO GO 5 DAY SPELL FREE BEFORE BEING SENT HOME WITH THE HELP OF THE CAFFEINE.WHICH TODAY IS ALMOST 7 MONTHS WEIGHS 12 PDS 6 OZ AND NO LONGER HAS PROBLEMS WITH APENA AND D SATS.UNLIKE YOU I HAD A GOOD EXPRIENCE WITH MASS GENERAL NICU THEY TREATED MY SON WONDERFUL AND DID NOT SEND HIM HOME UNTIL HE WAS READY.I AM SO GLA
Claudia Delgado		17/Nov/2000:17:21:39
Hi everyone my twin boys were born at 27 weeks weighing in 1 lb. 10 oz. -&- 1 lb. 11 oz. Wow what a emotional rollarcoaster the NICU was. They were at the childrens hospital at Stanford, which is about 30 minutes away. Driving every day to see them for 4 and a half months was hard...but I just thank God that they are alive. My boys are now 3 and although they are developmentally delayed and one has vision problems I still can't believe sometimes they made it. All these preemies are such troopers. A true insipation to me. If anyone out there wants to talk or just vent please email me knowing I know what it's like. That is often a frustrating feeling since none of my friends with kids really know what having a preemie is like.
Heather		11/Nov/2000:01:33:37
I just wanted to say congratulations and best wishes to everyone who views this page and reads the stories of all these tiny little troopers who make it their buiness to light up our lives, even if some only for a short while. My best friend had a baby 4.5 months too soon and he was not even a pound. Aftre struggling for an hour he decided he would be ebtter off at home with his TRUE Father, so I want to say hello to my Angel up in Heaven, Colin Michael .
jodi bellomo		23/Oct/2000:00:14:58
Thru the past 4 yrs of parenting my twin 4 yr olds, born at 26 wk gestation, I need to tell parents of other preemies, it is so important that if you can be with them in the NICU it makes all the difference, they need to feel your touch and hear your voice. and when they come home never treat them different than a full term baby take them to early intervention find out what you need to work on and do it. My daughters were in intervention from 3mos until 18mos., they were released at a 32mos level and they threw the doctors threw a loop with their milestones and strides. I never went by my girls corrected age, I always used their real birthday and I spend every minute I can helping them grow emotionally and intellectually. They are now in preschool and they are 2 of the smartest kids in their class(if not the smartest)!!!!!!!!!!!!!!! They know that they are special but not because they were preemies, because they are Jackie and Jocie. Although, the doctors will tell you your childr
Jodi P. Bellomo		22/Oct/2000:23:59:53
My daughters Jacqueline 2lb6oz and Jocelyn 2lb2oz were born on August26,1996.,at 26 wks gestation. Both needed help breathing,jaundice,BPD,blood transfusions, apnea,etc. Today they are healthy 4 yr olds, I just wanted to add this to help anyone going thru this experience now. Until my girls were no longer on meds I kept a log of their meds, (they were on so many), I used 1 notebook for Jocie and another for Jackie so that there was no confusion. This made a hard situation alot easier. Mommies of preemies have alot racing thru our minds, and the log books helped me to know which child had her meds and who needed theirs. This also worked with feedings. We tend to get alot less sleep than parents of full-term healthy babies,and dealing with 2 sick preemies the log really made a difference. Also, I called the dr. for everything, that is what he/she is there for so don't feel you are being a nuisance that is in their job description. God be with you all and Bless all of our children.
Jodi P. Bellomo		22/Oct/2000:23:00:32
Thank you for your story it brought back so many memories of my experience with my daughters Jacqueline 2lbs6oz and Jocelyn 2lb2oz and their stay in the NICU. They were born at 26 weeks gestation. There was many a days I thought I was not going to make it thru, but seeing these 2 tiny little babies able to make it made their mommy keep going. Now they are 4 years old, they were born on August 26,1996., and they are the joy of my life. I couldn't imagine if things would have turned out different were I would be without them in my life. Thank you again, Jodi Bellomo
julie		06/Oct/2000:15:09:12
My water broke at 24 weeks, and after 8 weeks of bed rest Chloe Rose was born(32 weeker)at 5#6oz; but since I had no water that 8 weeks she was very sick. She had 3 blood transfusions, jandice, hydrcephalos (sp?),+ much more. The water on the brain was not discovered till half her brain was eaten up by the enlarged ventrical.She came home on O2. Her first 2 years required therapy for EVERY MILESTONE, but she is catching up. She is 25 months old -&- the joy of my life. Her start wasn't an easy one, but looking at her, you'r never know it.
Robin S.		31/Jul/2000:22:31:48
My daughter Sara was born at 28 wks, 1lb 7oz on 1/14/92. She came home 7/5/92 weighing 7lb 6oz. She had the usual preemie problems; BPD, severe reflux, Grade 2 bleed, kidney stones, etc. She has had a feeding tube since before she came home, and has yet to learn to eat properly. She will have to repeat kindergarten because of learning difficulties and has recently been put on Adderall for her attention problems. She now weighs 35 lbs at 6 1/2 yrs of age. I read many preemie stories on the net and would be happy to hear from anybody who has similar experiences.
Tabitha McIntire		20/Jul/2000:20:50:01
The doctors didn't even think that both of them were going to make it, but I delivered two beautiful little girls. Both girls were doing great within 3 days they were both in room air and they started their feeds. The only set backs were that Desiree had a heart murmur and Emily had a small case of jaundice. I received a phone call on the 7th, it was the nurse saying that Emily was a little sick and that the doctors thought it was an intestinal infection. When we got there the doctors said that she did in fact have NEC, they had started MEDs but they didn't seem to be helping. They made the decision to send her to surgery. She made it though surgery, but they had to remove almost all the small and large intestine. Which meant she probably would have to be fed intavenously for the rest of her life. In the hour after surgery she was again on a vent and they had to recesitate her 3 times. We needed to make the hardest decision of our life and we chose to remove the vent. Want
Tabitha McIntire		20/Jul/2000:20:31:10
Our identical twin girls Desiree Leslie and Emily Jean were born on April 27, 2000. Desiree was the first to be born weighing 3lbs 10 ozs and Emily weighed 2 lbs 9 1/2 ozs. They were born at 32 weeks gestation. I guess I should probably go back to the beginning, I found out I was pregnant in November of '99, which was totally by mistake. Then in December I found out we were having twins, my doctor believed they were monoamniotic (meaning they were sharing the same amniotic sac) so I had to change doctors. Then when my new doctor did an ultrasound they ruled that diagnoses out and they thought I had stuck twin syndrome which meant a second opinion and another new doctor. They sent me to a specialist in Grand Rapids which is a 45 minute drive from where we live. He said I did indeed have stuck twin syndrome, it was caused by twin-twin transfusion. This was all occuring in my 18th week of preganany, from that time until my girls were born I had 11 amniocentisis. The doctors di
Tabitha McIntire		20/Jul/2000:19:53:51
Steve and Tessa	Kirsten and Chesley's Playground	04/Jun/2000:21:41:59
Your twins look wonderful. We can relate. Our girls were born at 28 weeks and have survived Twin to Twin Transfusion. They still have not caught up today. At almost 14 months they weigh 15lbs and 18lbs. However, they have been blessed with no disabilities; so far!. You have a wonderful page.
Natalie Potter		31/May/2000:20:52:37
Hi! I appreciated reading all of yoru stories. It is really nice to know you aren't alone. I have two children. I went into labor at 23 weeks with my son, but miraculously due to faith, prayers and a wonderful doctor he wasn't born until 38 weeks and was absolutely fine. It was a horrible four months, but the outcome was worth it. When I was pregnant with my daughter I was again having a difficult pregnancy, and at 31 weeks went into labor. It was temporarily stopped with bedrest and medication. Three weeks later, I went into labor again and spent the next eight days having mild contractions every five minutes while my doctor insisted that it was his policy not to deliver until 36 weeks. Finally he consented and allowed me to have the baby and Kyrie Nicole was born shocking everyone when she tipped the scales at 7 lb 1 oz. But she was not breathing and the NICU team rushed her away from me. Somehow they got her breathing and they sent her home with me the next day saying
Sabrina		30/May/2000:19:41:12
I'm so glad your girls both made it and that you put together a site for preemie parents and others to visit. I know you cherish your children and that they are a great joy to you. In looking through the guestbook, I am feeling, though, like I'm the only preemie mom whose baby did not survive who has come to your site. Maybe I'm just the only bereaved mom of a preemie who still wants to read about other preemies' stories...but to me each baby is precious and a miracle, and I am heartened to know that most preemies do come home. Our son Ethan was born at 31 weeks, weighing 2 pounds, 7 ounces. Little E lived his entire life in the NICU. He lived for 4 1/2 months before his death on January 19, 1997. Ethan had very serious problems with his lungs, worse than most preemies his size and age, because his medical condition was complicated by Marfan's syndrome, which affected the lung tissue and made it impossible for Ethan to grow healthy lungs. We have millions of Ethan stories and
viktoria jovanovic		18/May/2000:05:22:24
Hello, our daughter was born at 23 weeks gestation at Mount Sinai Hospital in Toronto Canada. Suffice it to say that we have had our share of ups and downs but thanks be to God, all is well and we are due to come home any day now. To date, she has been in hospital for 105 days of which the only major problems have been respiratory. At the moment we are trying to fix her eyes and then we are homeward bound. Thank you to all of the parents who have written stories of support. They have really helped us manage our very difficult time.
Cathy Dowell		26/Apr/2000:14:41:35
Hello, I just read your story and was brought to tears as I always am with the preemie stories because they hit so close to home. My daughter was born on 11/11/99 at 27.3 gestation weighing 920 grams, 2lbs, almost 1 ounce. She came home on 2/4/00, she was due on 2/13/00. It was (and I'm sure always will be) the biggest nightmare of our life. It's amazing how callous the doctors can be. It still is a struggle now, but more within ourselves than anything else. Our biggest complication now are her eyes. She had a lensectomy in her L eye and wears a contact lens in that eye daily. We are very happy to have her and she is a very spoiled little girl. :) :)
lisa		18/Apr/2000:10:50:00
hi I ENJOYED READING YOUR STORY. I ALSO HAD 2 PREMIES . ONE WAS BORN AT 33 WEEKS, THE OTHER AT 30 WEEKS. BOTH DUE TO HIGH BLOOD PRESSURE. THEY ARE BOTH DOING GOOD NOW, BUT FOR A WHILE IT WAS TOUCH AND GO.
Nicky Wallace		13/Apr/2000:04:03:41
Donna Wilde		09/Apr/2000:08:49:01
My tthird was born 14 to 16 weeks premature back in 1985. According to my calculations he was only about 10 to 12 weeks early. He suffered amassive head injury. He needed a shunt due to eccess fluid on his brain. He was big (4 pounds 6 ounces so our doctor mistakenly did not check him over well enough and missed the fact that his little lung swere not developed.(my babies tipicaly weigh in at 10 to 12 pounds)He was care flighted to Fort Worth Tx NICU where he stayed for 3 months. We made the trip every Wednesday and Saturday. More often if needed. We brought him home thinking that all was going to be ok. It was just the beginning of many trips appointments and surgerys. He got meningitus 2 times in one month.He crid about 20 hours a day and could not eat so finally had to have a feeding tube which he still has to day(it saved hs life) I don`t want you to think it has been all bad. This little boy his the sunshine in our lives. Through him we have learned many things and met many p
kai		05/Apr/2000:20:31:54
my son was 860 gm at birth 27 wk gest. kids r great
christine baker		23/Feb/2000:01:22:28
My twins were born 7-21-92 11 weeks pre-mature. Brett weighed 2lbs 15ozs and Bryce weighed 3lbs 7ozs. Brett was the stronger of the two and first born, eventhough he was a smaller. Bryce was having a more difficult time breathing and had to eventually be placed on a ventilator. Brett was moving right along being gavage fed and gaining weight, until 6 days after birth. The neonatalogist came to us and said that he was not digesting his feedings very well and they are going to back off until they have some tests ran. Brett laid there getting worse by the day. His once bright pink skin soon became gray, his body seem to be drained of energy, and his stomach very distended. The surgeon came in and said that he did not feel comfortable with Brett's down-ward turn and wanted to immediatley do sugery. He told me about the possibility of a colostomy (which I had never heard of at the time) and also the seriousness of the illness. Brett was then rushed to surgery. Brett returne
beth		14/Jan/2000:17:40:00
MY TWIN GIRLS WERE BORN 6 WEEKS EARLY THEY WEIGHED 4lb 9oz and 3lb 12oz when i was 20 weeks preagnant the twins developed twin to twin transfusion syndrome which can be a really fatel condition for twins when the hospital told me i thought i might have to lose them but after more tests they allowed the pregnancy to carry on .then when i was 32weeks i develiped pre eclampsia so i was in hospital for two weeks then on october the 7 i had a caserian the twins were in special care for two weeks but for the first day i couldnt hold them because they were in incubatosbut by the next day they were both out of them and doing well. The twins are doing ok now but they have a lactose defficency and they have to drink soya milk
Tena Wainwright		04/Nov/1999:13:02:29
I had a premature baby of 35 week gestation. He weight 4.5 pounds. He seemed to be fine at birth except for being small. Within 48 hours blood was in his stool and he was diagnosed with NEC. He was rushed to Scottish Rite Hospital in Atlanta, GA for surgery. He was not expected to live two weeks. He underwent several surgerys and had 80% of his intestines removed. He was also put on the liver/intestional transplant list in Omaha, Nebraska. My son lived almost 10 months and was a blessing with his smiles the entire time he lived. He was unable to eat by mouth and was I.V. and tube feed all his life. I really would like to do a survey to find out what causes NEC. Is it due to preg., labor, or something in the hospital nursery when they feed the babies that give them bacteria in their intestines that kill their intestines. Anyone, with similiar situations please email me.
Alana Schuler		02/Nov/1999:21:39:06
My girls were born 13 weeks early. We have been extremely blessed. They arrived May 23, 1999, and came home Aug. 10th, 1999. While my heart goes out to those whom have had difficult times with their preemies, along with a certain indefinable guilt, I can't help but thank God, that my girls came through without any major difficulties. I was admitted to the hospital on May 3rd, with possible pre-term labor, while the monitor wasn't picking up any contractions, I was still effacing and dilating some, leading to a diagnosis of an incompetant cervix. I spent the next 3 weeks on bedrest in the hospital, and awoke at 6am the 23rd with some bleeding. When hooked up to the monitor, I had 5 contractions in 17 minutes. They tried to stop my labor unsuccessfully, as my water broke at 8:15am. Delivery was imminent. They gave me an epidural in case of a need for c-section. Took me (husband and my mother too) to the OR, and delivered my first daughter Marissa D'Lynn vaginally, and my second dau
Steve -&- Tessa	Kirsten -&- Chesley's Playground	14/Aug/1999:22:41:42
We enjoyed your web page, thanks for sharing your story
Jennifer	Steffa Family Web Page	12/Dec/1998:00:10:51
Hello, My name is Jennifer and I had a Premature baby this year. As someone said here, you don't expect it. It was my 3rd baby my first born was 2wks early and my second baby was 2 wks late. I was surprise at 34 weeks when my water broke. I am glad I made it that far. I did vomit my whole pregancy, I gained only 16lb, ten were within the last week, and I had gestational Diabetes. I warned the doctor the last week something just wasn't right but she didn't listen. My midwife checked me (9am) 2/3/98 me the morning my water broke (7am)and said nope I was fine. I leak fluid all day thinking I was losing bladder control. I finally went back in to be checked again I was right! I was admited at 11pm that night 2/3 with pos of water breaking. I never went into labor, make a long story short, I had a c-section on Sat monring 2/7 do to the baby D cells, and the fact that I was induced for 18 hours and only went to 3cm and baby still had not drop. The hospital that I was about to give birth
Cynthia Bissell	Bissell Home Page	06/Dec/1998:19:44:14
Richard and Cynthia Bissell are both Registered Nurses who formed Twin Enterprises in order to advocate for children with disabilities and their families. Richard and Cynthia have twin sons who were born at 26 weeks gestation and both have special needs due to their premature birth, Eric (spastic quadriplegic cerebral palsy) and Aaron (BPD, subglottic stenosis, s/p tracheostomy, ADHD)
cheryl deleon		12/Nov/1998:23:28:15
i'm not quite sure how i ended up ere but i've truly enjoyed this site. i don't have a preemie but my second son now 21 months was born with a sequestration attached to his right lung. being so uncommen the docters weren't sure what they were looking at until after birth and surgery. we spent over a month in nicu and just like all the entries i've read we lived in constant uncertainty the whole time. by the grace of god our son now is fine with only a case of asthma. no problem i just wanted to share that i too lie many others value the lives of all the children born everyday because they truly are miracles.
Debbie Broad-Erickso	A.A.P.I. Online	12/Nov/1998:11:38:35
The American Association for Premature Infants (A.A.P.I.) is a national non-profit organization dedicated to optimizing the quality of health care, developmenatl and educational services for premature infants, children and their families through advocacy, education and communication. A.A.P.I. welcomes members from all nations and offers a free first year of membership to all parents who have had preemies. Health care providers and those who feel preemie awareness should be brought to the forefront are also welcomed to join! A.A.P.I. offers all of its members a free 16-page (and growing) quarterly newsletter called,"The Voice" and encourages you to get involved...make a differenc...become a member!
Debbie Broad-Erickso	Sarah's Site	12/Nov/1998:11:34:59
Sarah was born at 28 weeks gestation weighing 800 grams, due to HELLP Syndrome and IUGR. She is a beautiful and bright little girl who we are blessed to have. Come meet her, listen to her and see what a joy is.
Kirsten -&- Dan Higman	Nate's Homepage	11/Nov/1998:16:47:01
I went into labor when I was only 25 weeks pregnant. My pregnancy had been ideal up until that point. Now that I think back on that time, I think I had been having bouts of pre-term labor for a few months. When I checked into the hospital, imagine my surprise to find I was carrying twins! Three days later I gave birth to two boys, Nathaniel Vance and Zachary. Zachary died at birth from a prolapsed umbelical cord. Nate is now 8 1/2 months old, is finally home from the hospital and is doing very well! Having a preterm infant isn't something you ever think will happen to you. It has been the wildest ride of our lives, but we wouldn't trade Nate for anything. Check out our web site to get the full story and see pictures of our beautiful baby boy!
Raija	The Story of Sandra	11/Nov/1998:16:15:03
Sandra, our georgious daughter, was born 12 weeks early due to preeclampsia after two weeks hospitalized bedrest. Here you can find her birthstory and photos. This i English. For those who know Swedish there´s more, the whole diary from the time at the NICU and links to swedish preemie-pals and a lot more! Welcome!
Elisa Carney	Kareem	11/Nov/1998:12:45:14
I feel truly blessed and lucky when I read your story. My son was born at 28 weeks on April 30, 1986. He was on the respirator for a week and did received a blood transfusion for anemia, but other than that has had few complications. He went home two months and two days later. He is now almost a teenager and has few residual effects of his prematurity.
Gene and Nancy Field	The Bronchopulmonary Dysplasia (BPD) Page	10/Nov/1998:09:28:42
Kim, Thanks for the supportive comments on our page. Good luck with your litlle one too! Nancy and I have had six children including Brian - the BPDer - 4 boys and 2 girls.
ruth		09/Nov/1998:15:52:27
we have twins born in March 97 at 28 wks. Allanah is fine, but Miranda was diagnosed with cp in March 98, she is doing well, commado crawling, and talking some, thanks in large part to her sister's constant rambling! the girls spent 2 months in the hospital and never had to return, thank goodness. Miranda is invovled in Early Intervention and continues to improve on a daily basis.
Monica	Sharon's story	09/Nov/1998:13:16:35
We are a Dutch family, we live in the Netherlands in a village near Rotterdam. We have two daughters, Sharon 8 yo. (almost 9) and Naomi 6 yo. Sharon was born premature, at 29,4 weeks. You can read the story at the above URL. Greetings from Holland, Monica.
Peg	Jake's Room	08/Nov/1998:23:21:50
Jake was born 5 weeks early on 12-23-97. You can read his story in Jake's Room!
Maria Peterson	The Peterson Family	08/Nov/1998:20:22:24
Come by and visit our little home on the internet. Learn all about our family, including our son, Michael Andrew, who was born on New Years Day, 1996. He was a 34 weeker who is now soon to be a three year old 35 pound little boy who outweighs one sister and is approaching the weight of his 6 year old sister!! Look out girls, big brothers getting back at you!!!
Kim Rowley		08/Nov/1998:08:46:07
Hi, I thought I would be the first one to give thing a try! I hope you all enjoyed reading Our Preemie Twins' Story and could relate. I look forward to reading everyone else's stories.