RSS Feed

Saturday, February 4, 2012

Are you looking for special baby shower decorations for preemies or twins?

Necrotizing Enterocolitis Study

Posted by kim on February 5, 2009

If you read our NICU story, you know that both of my twin daughters were diagnosed with Necrotizing Enterocolitis (NEC) where the bowel become infected and dies.  Macy had seventeen inches of her small intestines removed and a temporary colostomy.  Mallory only had a few centimeters removed and was fortunate not to have to have a stoma put in. Back then (15 years ago), the mortality rate for infants infected with NEC was 77%.  Thankfully my girls beat the odds.

I subscribed to TWINS Magazine when the twins were still babies, and met many new friends in similiar situations through their PenPal section.  This is before we had the internet – imagine if I had access to all of the information online back then!  I corresponded with several other moms of preemies, and I was especially interested in hearing from those who had experienced NEC firsthand.

I found some interesting trends among those that wrote to me, so when I started a website dedicated to my “Million Dollar Miracle Babies”, I made an online survey for others to participate so I could see if I got the same conclusions.  Here are some statistics thus far…

  • NEC is more common among males than females 
  • In twins/multiples, NEC is more common in the first born.  
  • NEC is more common among formula fed infants than breast fed infants.
  • There is litigation that some PDA medicine may be linked to causing NEC.

    • Obviously my daughters skewed the stats being female.  And usually in twins, only one (and usually the first born) has NEC.  Whereas both of my daughters suffered from it, but Macy (Twin B) was worse off.  My girls were formula fed and given meds for PDA, though.

    If you or someone you know have had experiences with this deadly disease, I would love to hear your results by completing our NEC Survey.  All of your answers will remain confidential.

    I would also love to hear your NICU story!  Share your story to be posted here on PreemieTwins.com!


    Comments: 2 Comments to Read

    Filed Under: Macy & Mallory, Preemie News, Twin News

    Tags: , , , , , ,

    Fostering a sharing and caring environment at home is nothing short of difficult. Especially for twins, who are often times expected to be each other’s best friends, expectations can be overwhelming. Bunk beds for your twins can grant them individual spaces while still learning valuable lessons about compromise and cooperation. The bunk bed helps save space in the kids’ room while your twins work together toward a common goal, whether it be making the bed or deciding who gets to sleep on the top bunk. Comfortable, secure, stylish, and a space saver, bunk beds can also be a vital learning tool for teaching your kids an important lesson in cohabitation.

    Hi I have two beautful lil twin boys James and Matthew

    Posted by Nikkibeans1985 on

    I had james and matthew at 26weeks james was 2 ounds and Matthew was 1 pound 1 ounce they where born January 13,2009. well i havent had as much support my family is mad at me cause i had them early and their dad not ready to grow up so im kind of on my own in this with my babies. So im trying to stay strong but its kind of hard when im in it by myself.yes i pray every nite and day for them but i just cant find away to make myself stay help maybe u can help me and tell what i can do for myself to stay happy


    Comments: 5 Comments to Read

    Filed Under: Stories

    Tags: , , ,

    We appreciate this month's PreemieTwins.com sponsor of Gainsville AC service who helps us provide free resources for parents of premature infants and multiples.

    home top